What rare disease do I have today? Page 2

Quote: Nil Putters @ October 3 2009, 11:31 PM BST

If it's 13 and 3/4 inches, it's probably ok.

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Agreed.

My labrynthitis has returned. I'm dizzy and miserable and hoping it will go by tomorrow. (Luckily it comes and goes in short, sporadic bursts). I went to the gym tonight in a bid to fight the bastard off and it worked for a few hours, but now it's back with a vengeance. F**king c**t of a thing. I hate it. If it was a person I'd kick its f**king head in right now.

I'm not violent really. But this thing really pisses me off. It's basically an inner-ear disorder that makes you feel like you've just been spun around on a roundabout a hundred times. It makes you puke and angry and confused. A bit like BBC Three.

If any BBC execs are reading, I didn't say that, it was my labyrinthitis.

You have my sympathy. I had vertigo in January and it was horrible.

Do you get it often?

Quote: JuliaC @ October 4 2009, 12:37 AM BST

You have my sympathy. I had vertigo in January and it was horrible.

Do you get it often?

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I've had it on and off for 7 years now. A few weeks ago a GP told me in confidence that there's a national epidemic of vertigo / inner ear disorders going on. We never hear about it because of the other stuff that's always in the news - eg Swine Flu, BSE etc. He said he's had several people in the last few months calling his surgery and asking if it's a new "dizzy" virus. Of course he had to play it down, but he admitted to me that everyone he knows, knows someone who's had some sort of inner ear / vertigo problem in the past year. He reckons it's a huge, growing problem that the British public haven't really caught onto yet, and he also reckons it's being caused by something in the environment. Sounds a bit like a conspiracy theory, but I have to admit that since I was diagnosed, almost everyone I've told has a similar story to tell regarding themselves or friends and family.

Is Tim Walker reading this? I wonder if he's heard anything on the medi-grapevine?

Oh cripes.

Quote: Lee Henman @ October 4 2009, 12:59 AM BST

inner ear disorders going on. We never hear about it

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>_<

This sounds horrible though, apart from Julia I also know someone at work with vertigo, it does seem very common.

Quote: Nil Putters @ October 4 2009, 1:06 AM BST

>_<

This sounds horrible though, apart from Julia I also know someone at work with vertigo, it does seem very common.

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So that's another person who knows someone with it. Anyone else?

Quote: JuliaC @ October 4 2009, 1:03 AM BST

Oh cripes.

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Wouldn't worry too much Julia, for the majority of people it's a temporary thing. I've just been unlucky.

A friend at work got it about 6 months after I had it.

I'm sorry you've still got it though.

Quote: Lee Henman @ October 4 2009, 12:59 AM BST

Is Tim Walker reading this? I wonder if he's heard anything on the medi-grapevine?

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My sympathies, Lee. Labyrinthitis is not one of my hot topics, I'm afraid. I know that treatments tend to vary with success on a case-to-case basis and that often if it is chronic (as in your case) then it may well resolve spontaneously after even years of having it.

Have you been given anything to treat the symptoms during flare-ups? Such as prochlorperazine (commonly known as Stemitil)?

I get a vertigo type-thingee every time I get a headcold now.

I have no disease. I'm the cure.

Quote: Tim Walker @ October 4 2009, 1:20 AM BST

My sympathies, Lee. Labyrinthitis is not one of my hot topics, I'm afraid. I know that treatments tend to vary with success on a case-to-case basis and that often if it is chronic (as in your case) then it may well resolve spontaneously after even years of having it.

Have you been given anything to treat the symptoms during flare-ups? Such as prochlorperazine (commonly known as Stemitil)?

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I had Stemetil but it just makes me drowsy. Funnily enough I went to the docs again a few weeks ago because of a flare-up and he prescribed me a drug that I'd nevr heard of before - betahistine. I've been taking them and they've actually been working. I assumed it was a new drug until I looked it up and discovered it's actually been used to treat inner ear disorders for a long, long time.

I'm grateful I've found a drug that might be helping, but also enormously pissed-off that I might have spent the last 7 years suffering needlessly.

Quote: LIME5000 @ October 4 2009, 2:02 AM BST

I have no disease. I'm the cure.

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Sorry, what?

Quote: JuliaC @ October 4 2009, 1:15 AM BST

A friend at work got it about 6 months after I had it.

I'm sorry you've still got it though.

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Another one.

Quote: AndreaLynne @ October 4 2009, 1:55 AM BST

I get a vertigo type-thingee every time I get a headcold now.

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And another.

Quote: Lee Henman @ October 4 2009, 12:59 AM BST

I've had it on and off for 7 years now. A few weeks ago a GP told me in confidence that there's a national epidemic of vertigo / inner ear disorders going on. We never hear about it because of the other stuff that's always in the news - eg Swine Flu, BSE etc. He said he's had several people in the last few months calling his surgery and asking if it's a new "dizzy" virus. Of course he had to play it down, but he admitted to me that everyone he knows, knows someone who's had some sort of inner ear / vertigo problem in the past year. He reckons it's a huge, growing problem that the British public haven't really caught onto yet, and he also reckons it's being caused by something in the environment. Sounds a bit like a conspiracy theory, but I have to admit that since I was diagnosed, almost everyone I've told has a similar story to tell regarding themselves or friends and family.

Is Tim Walker reading this? I wonder if he's heard anything on the medi-grapevine?

View original

Some types of vertigo/dizziness can be cured by carrying out the Epley manoeuvre. Have you been referred to an ENT Specialist? I went to the ENT Hosp in London and my dizziness was cured after 10 years of medication, including those mentioned in this thread, Cawthorn Cooksey exercises and all sorts of other treatments had failed.
I had a day of tests, went back a week later and had the procedure and was cured within 15 minutes.

It depends on the cause of course and might not work for you, but they may have other suggestions and treatment options.
Might be worth asking for a referral.

My friend had Vertigo earlier in the year.

All I currently have is a pulled muscle in my neck, my head rotation is limited to about 45 degrees as opposed to the usual 360.

Current problem just physical - dentist tried to take a wisdom tooth out and ended up snapping off the crown and leaving the root in. In the process the damn tool slipped and stabbed the back of my mouth.

Been bloody sore all week, and now have to go to hospital to have the roots removed. Plus a badly impacted lower one below the gum needs to be cut out.
What a week.

But no vertigo

I was once diagnosed with sycosis barbae, but it's not as exciting as it sounds. I think it's just a form of folliculitis.

Oh and that sounds nasty, Rob0.